Chapter 3
The way people talk about autism has changed a lot.
We used to call autism a lot of different things. Some people still use these words, like:
- Autism Spectrum Disorder (ASD)
- Autistic Disorder
- Asperger’s Syndrome
- Childhood Disintegrative Disorder
- Pervasive
Developmental Disability Not Otherwise Specialized (PDD-NOS) - Atypical Autism
Today, we mostly just call it autism.
People with other disabilities can also be autistic, and autistic people can have more than one disability. Sometimes, these other disabilities are part of being autistic, and other times, they aren’t part of being autistic. Autism is a developmental disabilityA type of disability that begins when someone is very young. Autism is a developmental disability. So is cerebral palsy., and many people with developmental disabilities have more than one disability. That’s normal.
Here are some other disabilities autistic people sometimes have:
Learning disabilities (called “learning difficulties” in the United Kingdom):
- Dyslexia
- Dyspraxia
- Dysgraphia
- Dyscalculia
- Nonverbal Learning Disability
Mental health disabilities:
- Depression
- Anxiety
- Bipolar disorder
- PTSD
- Schizophrenia
- Eating Disorders
- OCD
- Tourette’s Syndrome
Disabilities that affect your body:
- Connective tissue disorders, like Ehlers-Danlos syndrome and Marfan syndrome
- Sleep disorders, like insomnia or sleep apnea
- Digestion disorders, like GERD and peptic ulcer disease
- Epilepsy
- Tuberous Sclerosis
Other developmental disabilities:
- Intellectual disabilitiesDisabilities that affect how you learn and think. People with intellectual disabilities might learn more slowly. (called “learning disabilities” in the United Kingdom)
- ADHD
- Rett’s Syndrome
- Angelman’s Syndrome
- Down Syndrome
- Cerebral Palsy
Some disabilities happen more in autistic people. Sometimes, people say that means autism is a bad thing, but that doesn’t make sense.
Think of it like this:
People with red hair sunburn more easily. Sunburns hurt and can cause skin cancer, but we don’t say that red hair is bad. We don’t try to cure red hair, or tell people with red hair to dye their hair. That wouldn’t help with their sunburns. Instead, we make sure people wear sunblock.
It’s the same with autism. Autistic people should get more support for all of our disabilities. We don’t need people to try and fix us!
Sometimes, autistic people don’t get an autism diagnosisWhen a doctor says you are autistic., and we might get diagnosed with other disabilities instead. Sometimes, we also have these disabilities, but other times, doctors are just confused. They might not realize we are autistic.
Women and people of colorPeople who are not white. For example, black people are people of color. get the wrong diagnosis the most, and get diagnosed with other disabilities instead.
Some of these other disabilities are:
- Deafness
- Schizophrenia
- Borderline Personality Disorder
- Avoidant Personality Disorder
- Schizotypal Personality Disorder
- Oppositional Defiant Disorder
- Social (Pragmatic) CommunicationHow we show others what we want and need. Everybody communicates! Disorder
- Nonverbal Learning Disorder
- Sensory ProcessingHow you think about and understand your senses. Disorder
- Depression
- Bipolar Disorder
- Anxiety
- Obsessive-compulsive disorder (OCD)
- Attention Deficit Hyperactivity Disorder (ADHD)
- Intellectual Disability
Autistic people can have disabilities besides autism. But some doctors don’t know a lot about autism, and might say we have these disabilities instead of autism. Doctors can be wrong.
Anyone can be autistic. Girls, women, transgenderWhen your gender is different than people thought when you were born. people, and non-binaryWhen someone isn’t just a boy or a girl. people can be autistic. People of color can be autistic. Teenagers, adults, and older people can be autistic. People with other disabilities can also be autistic.
Girls and women get diagnosed with autism less than boys. Lots of people think of autism as a “boy’s thing”, so girls might get diagnosed with other disabilities instead. They might be told they’re just shy or mean, but that is wrong! Girls can be autistic, too.
Autistic girls might not always look like autistic boys, since girls and boys might act differently. Girls might feel more pressure to fit in than boys do, and this can make it harder to tell if girls are autistic.
Studies about autism mostly focus on autistic boys. This means that we know very little about autistic girls, which makes it even harder for girls to get diagnosed.
There are lots of different genders, but some people think there are only 2. When people are born, the doctor usually says “It’s a boy!” or “It’s a girl!”. The doctor says this based on what someone’s body looks like, but sometimes the doctor is wrong. You don’t have to be a boy or girl just because of what your body looks like.
Sometimes, a person who was told she was a boy is actually a girl. TransgenderWhen your gender is different than people thought when you were born. means your gender is different than people thought when you were born. CisgenderWhen your gender is the same as people thought when you were born. means your gender is the same as people thought when you were born.
For example:
Billy is transgender. When Billy was born, everyone thought he was a girl, but Billy knew he was a boy. Billy told people that he was a boy, and now, he lives his life as a man.
There are lots of different genders. Sometimes, a person is not a boy or a girl. Sometimes, a person does not have a gender, or feels like different genders at different times. Non-binaryWhen someone isn’t just a boy or a girl. means that someone isn’t just a boy or a girl.
A lot of autistic people are transgender or non-binary, and we do not know why this happens.
That is okay! It is okay to be autistic, transgender or non-binary, or both!
Some people say that autistic people cannot understand ourselves. They might just say that we are confused about our gender, but they are wrong! Autistic people get to decide what our genders are, no matter what.
People of colorPeople who are not white. For example, black people are people of color. are people who are not white. Some examples of people of color are Black people, Asian people, and Latinx people. Anyone who isn’t white is a person of color.
White people get diagnosed with autism more than people of color, but people of color are just as likely to be autistic. Doctors aren’t very good at diagnosing autistic people of color. Racism can make it harder for autistic people of color to get diagnosed. They might get diagnosed with a different disability instead.
We need to work hard to support autistic people of color. Everyone should be able to find out if they are autistic.
Anyone can be autistic, regardless of how old you are. You can’t ‘grow out’ of autism!
Remember: autism is a developmental disabilityA type of disability that begins when someone is very young. Autism is a developmental disability. So is cerebral palsy., so if a person is autistic, they never stop being autistic. This means that people of all ages can be autistic.
Sometimes, people get diagnosed with autism when they are an adult. They didn’t have a chance to get diagnosed as a kid, or their doctor made a mistake. That doesn’t mean someone wasn’t autistic as a kid. They were still autistic their whole life, even before they got a diagnosisWhen a doctor says you are autistic..
Any type of person can be autistic. Autistic people are all kinds of people!
- Autism Self-DiagnosisWhen you figure out that you are autistic. is not Special Snowflake Syndrome – by Sara Luterman – http://nosmag.org/autism-self-diagnosis-is-not-special-snowflake-syndrome/
- Autistic Women & Nonbinary Network – https://awnnetwork.org/
- Adult Misdiagnosis – The Default Path to an Autistic Identity – by Autistic Science Lady – https://autisticsciencelady.wordpress.com/2019/06/15/adult-misdiagnosis-the-default-path-to-an-autistic-identity/
- Why It’s So Difficult to Diagnose Autism in Girls – by Somer Bishop https://slate.com/technology/2015/10/autism-in-girls-and-women-is-difficult-to-diagnose.html
- Autism’s Race Problem – by Pacific Standard – https://psmag.com/news/autisms-race-problem